Saturday, May 16, 2009

I am back! Kind of! And let's start Weaning!


Jrue on the kiddie roller coaster at Spirit Fest


I have the mental energy to get back to this blog! That is improvement if you ask me. Today was a great day.... and a long one. Jrue and Tommy were supposed to have their first baseball games of the season today - but they got rained out for the second week in a row. Lindbergh's Spirit Fest (the public school version of the catholic School Picnic) was today. We went (yeah!) and made it for about 3 hours before everyone had enough. Nonna and Papa (Craig's parents) met us up for lunch, and Bre, Morgan, Maggie and TJ came up for a while. It was so nice to get out for a while. I came home and went into a coma-like state for about an hour and feel much better now.

Have been feeling good off and on lately. It is wierd. Literally half of the day I will feel amazing and the other half it is like the worst flu ever. When the Channel Five story came out it was kind of mortifying how "puffy" my face looked..... so I decided that it would be a good idea to not take my Prednisone the other day. Not a good plan!!!!! It took a day - but for about 24 hours it was the worst kind of awful. There was an hour or so where I thought that we were headed to the hospital. Lesson Learned! Apparently the side effects will just have to be tolerated for now.

One really really fun thing going on right now is sweat. Out of bed for more than an hour I start profusely sweating - it drenches my scalp and drips off my face. A call to my Endo and I found out this was probably a sign of too much Prednisone. She called in 90 (1 mg) tablets and I am going down from 10 mg per day to 8 mg per day as of this morning. So far so good the sweat was not as bad today and the day was really good.... the Spirit Fest might have been pushing it a bit too much... but it was so fun to see the boys on the rides. I used to LOVE the school picnic when we were younger.

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